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Resources - Premature Children

Links and resources on this site have been collected whilst researching our own daughter's case, we hope they prove useful.

Educational

Department for Schools and Families

The Local Government Ombudsman

National Foundation for Educational Research

Advisory Centre for Education

National Parents Partnership Network

Partnership with Parents Guidance

Children, Schools and Families Committee - Parliament

Parents Centre

Information, forums and support for parents on how to help with your child's learning, including advice on choosing a school and finding childcare.

Medical Information - Development - Help and Support

BLISS - The Premature Baby Charity BLISS - Message Board

Action Medical Research

The British Psychological Society

Epicure - Population based studies of survival and later health status in extremely premature infants

Institute of Child Health - This is the joint website of Great Ormond Street Hospital for Children NHS Trust (GOSH) and UCL Institute of Child Health (ICH)

ADDISS - The National Attention Deficit Disorder Information and Support Service

The National Autistic Society - Autism and Asperger Syndrome

Neonatal Nurses Association

British Lung Foundation

RNIB - Supporting blind and partially sighted people

Cerebra - For Brain Injured Children and Young People

Tommy's - The Baby Charity - Tommy's exists to save babies' lives through funding research into and providing information on the causes and prevention of miscarriage, premature birth and stillbirth

APEC - Action on Pre-eclampsia APEC - Forum

Father's Forum Online - Includes a list of what to expect in the first 12 months of fatherhood, and provides a variety of articles and topics in the reading room section

ARC - Information about the different antenatal screening and diagnostic tests available in the UK

Sands - An organisation which can offer you support when your baby dies during pregnancy or after birth

Dyspraxia Foundation - Dyspraxia is surprisingly common in both children and adults. It is a hidden condition, which is sill poorly understood

Dore -Committed to solving the problem of learning difficulties

BDA - The British Dyslexia Association - Dyslexia - Dyscalculia - Maths

For Special Educational Needs Coordinators (SENCOs)

Many of these links and resources are useful for wide-ranging situations, including: prematurity and other groups of children with special educational needs requirements.

Website about Working Memory and Learning

For Teachers and Parents.

Resources available for educators.

University of York

Legal

Equality and Human Rights Commission

Bar Pro Bono Unit - A charity which helps to find pro bono (free) legal assistance from volunteer barristers

Childrens Legal Centre - The Children's Legal Centre is a unique, independent national charity concerned with law and policy affecting children and young people

IPSEA - Independent Panel for Special Education Advise - Parent of a child with special needs, problems with their education, disability discrimination at school - Free advise

SENDIST - independent judicial body which considers parents appeals against LEA decisions on SEN, and parents claims about disability discrimination by English schools or LEAs

SENTW - Special Educational Needs Tribunal for Wales - independent judicial body which considers parents appeals against Welsh LEAs decisions on SEN, and parents claims about disability discrimination by Welsh schools or LEAs

Resources are constantly being added. Eventually they will be better categorised into separate areas and pages, Alan.

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Support Site for Premature Children

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